Just who is Molly?
Molly Kate is our beautiful "almost three" year old daughter & sister. As Molly reached six months of age we noticed she wasn't meeting her developmental milestones. Together with her paediatrician, we started investigating a cause. After a harrowing six months Molly was diagnosed with Angelman Syndrome - this was shortly after her first birthday.
Understandably this was devastating for everyone in Molly's life. On the flipside a diagnosis was a relief after a long, tenacious search for answers.
We remind ourselves daily that Angelman Syndrome is something Molly has, and not who she is.
Why another website?
We are at the start of a journey often described as a marathon and not a sprint. We expect this website to grow as we learn more about AS, it's impacts and it's treatment.
We want this website to remove some of the hurdles we have faced so far, so others yet to tread this path wont have as many unknown obstacles in their way. We hope to share the knowledge we gain through our experiences to help others who find themselves asking the same questions and searching for the same answers.
By viewing this website, and passing it on to friends and colleagues, you help to create a voice for Molly.
Thankyou,
Rohan, Meagan, Eva & of course Molly!
"Just because a person may act, get around, look, dance, smile, read, learn, show what she knows, or communicate differently just means they are different - not deficient!" - the least dangerous assumption